Archive for January, 2010

Sick As A Dog

Posted in Long-Term Illness, Pregnancy with tags , on January 10, 2010 by Sam Sadie

I have had a cold/flu virus since Christmas, and it just isn’t shifting. In fact, every time I think it’s getting a bit better, it relapses and gets WORSE! It’s driving me bananas now! It’s gotten to the point where I can only sleep about 3 – 5 hours a night because I’m up so often because I can’t breathe through my nose! This stupid virus (as usual) has flared up all my ME/CFS symptoms too! And because of the pregnancy, I CAN’T TAKE ANYTHING that might make me feel better or help me sleep through the night! So, I’m just miserable now!

I sent Chris off to the pharmacy to get a recommendation on anything that I could take that is safe in pregnancy, and none of the pharmacists will commit to recommending anything! Their stock answer is: “Speak to your midwife”. Great. The midwife’s office is only open for non-urgent enquiries on week days, and when I have spoken to her before, she only really recommended a humidifier…which we’ve ordered online and are waiting for the delivery. But I need something NOW! This is really getting me down!

Sorry, this post is really just a way to let me vent. Thanks for “listening”.

XMRV Study in the UK

Posted in ME/CFS News with tags on January 6, 2010 by Sam Sadie

Thought I’d post this link. I heard about the study from my ME specialist in December 2009…

UK XMRV Study Results Published

Interesting that the results were negative… I wonder if it is quite telling about the subject sampling that was used in the research by the WPI? Or, as the article states, the reasearch methods used in the UK study were not suitable for detecting the XMRV. The scientist in me thinks that surely money would not have been spent on a research study where the validity (if not the reliability) of the techniques used were in doubt! Or am I just being naiive about researchers wasting funding on nonsense studies?!

I’m Back!!

Posted in Introducing New Event, Long-Term Illness, My Thoughts, Pregnancy with tags , , , on January 6, 2010 by Sam Sadie

It’s been a while since I last posted, and it feels good to be back! The long break was intentional, as I didn’t want to blog about my news until I was out of the woods (so to speak), and it affected every part of my life, so didn’t have much unrelated stuff to talk about… Never mind, here I am now…

As you may have guessed from the last paragraph (if you’re anywhere near as perceptive as a cousin of mine)…I’m PREGNANT!!! And I’m both thrilled and terrified! Chris and I had decided that we wanted to start trying for a family, and I was so surprised that we fell pregnant within about a month of starting! I actually did the first pregnancy test while Chris was at work, as I was convinced that I was just having a hormonal blip… I was stunned when it came back positive!!! I must have stood staring at the test result for about 5 minutes before it actually sunk in. Then I spent the next few minutes reading and re-reading the test insert to confirm that 2 pink lines did, in fact, mean that I was pregnant! Then it was pandemonium in my head. Yay, I’m pregnant…holy crap, I’m pregnant…what was I thinking?…I can do this…how on earth can I do this?…I’m going to have to push a whole baby out my wazoo…wait, let me read that insert just one more time…

I started my “morning sickness” (must be a man who coined that phrase!) two days before I found out that I was up the duff, but had put it down to un-wise breakfast choices (surely eating chocolate cake for breakfast causes nausea?!). The nausea then arrived with a vengeance, and I seemed to live solely on Marmite toast, bananas and satsumas. The toilet and I became almost inseparable friends. And my poor husband had to deal with my newly hypersensitive sense of smell… He bore it like a trooper. I couldn’t stomach any cooking smells whatsoever (though garlic and fish were by far my biggest aversions) and he was banished from my vicinity until the smells had stopped clinging to his clothes. It was so bad that even the smell of boiling pasta (essentially just hot salty water) made my stomach turn! Luckily, the nausea has mostly settled now. I can deal with the odd bit of sickness without too much fuss.

My first trimester also saw my fatigue symptoms worsen, although I was expecting that to be the case. There were days when an 11am nap just couldn’t be avoided. My ME/CFS specialist kept re-iterating at my last appointment, that good sleep hygiene meant NOT sleeping in the day… I just inwardly rolled my eyes, and thought that it was perhaps not such practical advice coming from a MAN – what would he know about being so tired that I wanted to scratch m eyes out! He did encourage me by saying that in his experience, the second trimester usually means significantly improved energy levels in women with ME/CFS. Here’s hoping!

I’ve had a few comments about the timing of the pregnancy, with my symptoms being as bad as they are. I’ve tried to ignore these as far as possible, as Chris and I DID discuss the implications of pregnancy and a baby BEFORE we started trying! Give us a little credit folks! We came to the conclusion that if we waited for a “better” time, we might never start a family… My ME/CFS can be so unpredictable, that who knows what it would be like in 9 months time… I have realised that we’re just going to have to take things one day at a time, and make things up as we go along when baby arrives…none of the “what to do with a new baby” books are written with ME/CFS parents in mind, so we’ll have to figure things out as we go along. Of course I have moments of panic when I think about having to cope with a baby (and then an active toddler!) on my own during the day while Chris is at work. I’d be delusional if I didn’t worry about it. But I’ve discovered a ME/CFS Parents Message Board online, and it’s brilliant to get in touch with other women who are pregnant and have ME/CFS (or have had kids while suffering from ME/CFS)… It’s helped me to feel less alone in this forray into the unknown! Once again, thank goodness for the internet!

I can only imagine that my ME/CFS (and the resultant inactivity) has turned my abdominal muscles to jelly. I will be 14 weeks along tomorrow, and I already have a belly, despite this being my first pregnancy. I’m now fully into maternity clothes, as nothing else fits anymore, besides my track pant and baggy t-shirts! I’ve resigned myself to the fact that I’ll be huge by full-term…

I had a bit of a scare the night before last, as I started bleeding, with small clots being passed yesterday morning. I called the out-of-hours GP service and was booked in for an emergency scan/check-up yesterday at the local early pregnancy clinic. I was so worried that there was something wrong, but luckily the scan showed Little Bean waving, kicking and squirming, totally oblivious to panic on my part! I was told it was probably bleeding from my cervix, and as I’ve never gone through this before, I’ll take their word for it!

Anyway, I’ll call it a day here, but I’ll be back blogging again soon…now that I can share my pregnancy with the world at large!